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Alma girl holding fundraiser for Turner's Syndrome Awareness Month

PAXICO, Kan. (KSNT) - A young Alma girl with a rare chromosal disorder needs your help to find a cure for her condition. 

Lily Schuetz is 11-years-old but bone scans show that her body is developed like a seven-year-old, due to Turner's Syndrome. The condition affects one in 2,000 females in Kansas. 

Kansas Gov. Laura Kelly declared the month of February as Turner Syndrome Awareness Month. 

“They don’t think that she’s going to grow anymore," said Crystal Schuetz, Lily's mother. "They do have growth hormones that they can give children to help them grow. I know many of the Turner syndrome children do do it, where they have to give shots to themselves everyday." 

Her fundraiser is at Orange Leaf Frozen Yogurt in Manhattan from 5 p.m. to 9 p.m. on Monday Feb. 4. Fifteen percent of the proceeds go to Turner Syndrome Society of Kansas City.


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